My 10 yr old son was recently diagnosed with NLD and we are having trouble getting any help. We got more help from outside sources when we believed him to be Bipolar. Part of it is because NLD isn't recognized in the DSM. Another part of it is because people don't understand NLD. So my question is, with the debate that NLD might be part of the Autism Spectrum, can I refer to my son as having ASD with teachers and the school, or is that like calling a excitable child ADHD without a diagnosis?
Wow sorry for answering this so late!!!!!! With the inbox interface stuff you haven’t answered can get stuck in the back without you noticing!!
I completely understand your frustration- My youngest brother and I are both learning disabled (although not in the same way) and my mom is having the hardest time getting accommodations for him at school, even though he has all the paperwork and went through all the testing the school said he would need.
I would continue to refer to your son as having NVLD, partially because a) that’s what I assume it says on his paperwork from his diagnosis and if you tell the school that your child has ASD and then that’s not on the paperwork you might have an even harder time getting what he needs. b) ASD and NVLD are not necessarily the same thing and you don’t want your son or his teachers to get confused.
I would also recommend doing some of your own research and trying to give your son all the tools at home that he needs to get his homework done and maybe having him use some of those tools at school as well.
Hope everything works out!!!